Summer holidays, I love them! Quite honestly every year I get to a point (usually January) where I need to plan a break, I need time in the sun, time in the sea and a little time for a cheeky sangria!
But for our little family there are a few more things we have to think about, because my son Parker has Cystic Fibrosis. For those of you that are unaware of what this means it’s a life limiting genetic condition that affects the lungs and digestive system. It’s a complex condition and there is currently no cure. Sometimes I struggle talking about the things that mean the most to me, that’s why it’s taken so long for me to pop this blog up. Silly really as it’s such about such a happy time, but it’s about reality. However I think raising awareness is so important, and talking about CF is a relief for me. I’m writing this blog because sometimes CF is misunderstood, so if you’re a parent or family member with a CF child, and you can relate or know someone with CF or just someone wanting to know more and understand a little then please keep reading.
So what does having CF mean for travelling?
Currently Parker is well, so we are still lucky enough to be able to fly. Which is good because our little one loves aeroplanes!
But like I said there are a few extra things we need to add to our list. So after booking where we’re going next comes travel insurance. For this advice we sought after Martin Lewis the money saving expert for a good deal but with quality care if anything did happen. So we found Get Going Insurance who were a really reasonable price and covered Parker’s CF needs if he needed it.
Next up fit to fly letter, we had to contact our CF consultant to get one written along with the details that we needed to carry his medication in our hand luggage.
We popped his inhaler, his physio PEP mask in the case and along with everything else we were set to go!
The flight there was a dream. We had no issues with check in, and explaining to the lovely air hostess that his cough was normal for 7am before he’d had physio was okay too. Flying can sometimes be a tricky one if it’s long haul. All the bugs and bacteria in one space with reconditioned air. But thankfully after a two and a half hour flight, he was well over the week we were away.
Holiday life really is the best life a week away from the everyday stresses of reality, but again there were some things that we had to make time for. 20-30 minutes of physio a day wasn’t the easiest when the pool was calling little one! And making sure he took his vitamins whilst we were over there was so important as well as adding salt to his meals to ensure he had the right balance so he didn’t become dehydrated.
Our experience of CF on holiday was like CF day to day. Nothing really changed. On the way home however I was taken aside at Palma Airport to check for drugs because I was taking vitamins in my hand luggage, it’s fair to say that was a little embarrassing!
But overall we had the best week, and I just want to make the most of it. Keeping Parker well is one of my biggest goals in life. Giving him the most support and telling him that he can do, and be anything. Travelling the world, one summer holiday at a time!
If you’d like to find out more about CF and what work the Cystic Fibrosis Trust does. Please check out the link below x